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Tonya Patel

Alzheimers Association - Western Carolina Chapter

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Alzheimers Association - Western Carolina Chapter

Our Mission: To eliminate Alzheimer's disease through the advancement of research; to provide and enhance care and support for all affected; and to reduce the risk of dementia through the promotion of brain health.

Website: http://www.alz.org/northcarolina/index.asp
Location: www.alz.org
Members: 5
Latest Activity: Sep. 9, 2009

Holidays are opportunities to share time with the people you love. Try to make these celebrations easy on yourself and the person with Alzheimer’s disease so that you may concentrate on enjoying your time together. Here are some suggestions:

Adjust your expectations
*Call a face-to-face meeting or arrange for a telephone conference call with family and friends to discuss holiday celebrations. Make sure that everyone understands your caregiving situation and have realistic expectations about you can and cannot do. No one can expect you to maintain every holiday tradition or event.
*Give yourself permission to do only what you can reasonably manage. If you’ve always had a big holiday party, consider inviting fewer people for a simple meal. Or, have a potluck dinner or ask others to host the holiday at their home.
*Consider celebrating holidays over a lunch or brunch, rather than an evening meal, to work around the evening confusion or sundowning that sometimes affects some people with Alzheimer’s.
*Write a letter or an e-mail to others letting them know about your situation.
*Involve the person with dementia in holiday activities
*Involve the person in safe, manageable holiday activities. He or she could help you prepare food, wrap packages, hand you decorations or set the table. Avoid using candies, artificial fruits/vegetables or other edibles as decorations. Blinking lights may confuse or scare the person.
*Maintain the person’s normal routine so that holiday preparations don’t become disruptive or confusing. Taking on too many tasks can wear on you and the person.
*Build on past traditions and memories. Your family member may find comfort in singing old holiday songs, for example. But also experiment with new holiday traditions, such as renting seasonal videos.

Gift ideas for the person with dementia
Choose the best type of gift for your loved one based on his or her interests and abilities. In the early stages, a person may appreciate tickets to a show or musical, or simple and familiar games like dominos or bingo. Items that help with memory like magnetic refrigerator pads and calendars may be good gifts.

When a person is in the middle or later stages of Alzheimer's, you may have to adapt your gift giving. Encourage people to buy useful gifts for the person such as:

*identification bracelet, such as the one offered through MedicAlert® + Alzheimer's Association Safe Return®.
*comfortable, easy-to-remove clothing
*audiotapes of favorite music or books
*videos of favorite movies, animals, sports team or travel destination
*subscriptions to magazines that reflect hobbies, such as a gardening or cars
*warm blankets or quilts
*photo albums
*scented lotion
*Advise people not to give gifts such as dangerous tools or instruments, utensils, challenging board games, complicated electronic equipment or pets.

Depending on his or her abilities, get the person involved in giving gifts. For example, someone who once enjoyed cooking may enjoy baking cookies and packing them in tins or boxes. Or, you may want to buy the gift and allow the person to wrap it.

Caring for yourself
When friends or family members ask what you want for a gift, suggest a gift certificate or gift card to a favorite restaurant, store or spa. Or you can suggest something that will help you out as you care for your loved one, like a cleaning or household chore service.

Do your best to manage holiday stress and caregiving stress (not to mention the family stress that can come with the holidays). If you find it too overwhelming and need support, call the Alzheimer's Association to talk with one of our care consultants at 1.800.272.3900. You can also chat with others who know what you are going through on our message boards.



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Tonya Patel Comment by Tonya Patel on September 2, 2009 at 11:51am
Check out the events calendar on iMatthews for September 21 and November 14. Wear Purple for Awareness on the 21 for World Alzheimer's Day. And join me, along with 104.7 Radio Personality Holly Haze for the Memory walk Saturday November 14 at 9am. See you there!
Linda Hendley Comment by Linda Hendley on August 29, 2009 at 8:08am
We are currently going through this with my father-in-law. He was diagnosed 8 years ago and has been in a facility for the last 3 years. It is so sad to see such a smart man living in a shell of a body. He is in the final stage and I pray for him every day. He and my mother-in-law will celebrate 50 years of marriage on September 9 and it is sad the he will not even understand. She is by his side every day and I know it has taken a toll on her. Very hard to deal with. I enjoyed your story. Thanks for sharing.
Tonya Patel Comment by Tonya Patel on December 8, 2008 at 11:46am
My family has been residents of Matthews since 1972. My dad was a Charlotte police officer, a great artist and creator. He would do leather work and wood carvings for a hobby. "Bob's Hobbies" is what he use "barter" with people. He would always trade someone something for his work and rarely took money. If he did, the buyer got so much more for his money than he even knew.

During the last year of my high school days, I started noticing my dad was doing and saying strange things. Not too surprising since he was always the joker. But as the years went by, they kept getting stranger.

He was diagnosed with Alzheimer's Disease in the late 1990's after a few years of early dementia, as we found out later. We realized he would not be able to stay at home with my mother any longer due to his increasing violent behavior (common in Alzheimer's patients).

He lived his last 4 years in a nursing home until July 20, 2007 when he passed away. For us, he was already gone except for his physical body, but it was still sad to know that a person with as much talent as he had, didn't get to grow to his full potential.

He had early onset Alzheimer's, which concerns me. This can cause an offspring (myself or my brother) to develop this disease early as well. Things can be done to help prolong the onset of the disease, but I certainly don't want my daughter to have to go through with me, the same thing I went through with my father. That's why I'm involved with this cause. Please join me in helping fund the research to help stop Alzheimer's from stealing our memories. It's one think to know that you have a disease, it's another to forget you are even sick. Thank you for listening and please share your stories here. I'm here for your sounding board.
 

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Tonya Patel Nancy (LaFond) Moore Linda Hendley Darryl Parker Becca Carpenter
 
 
 

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